This World Cerebral Palsy Day, the All Party Parliamentary Group (APPG) on Cerebral Palsy, co-chaired by Mary, has released a report calling for better support for children with cerebral palsy.
As co-chairs of the APPG Mary, along with Paul Maynard MP, said of the report:
We are delighted to commend to you the second report from the All-Party Parliamentary Group on Cerebral Palsy, set up with the help of national campaigning charity, Action Cerebral Palsy. Cerebral palsy is a lifelong condition and the most common motor disability in childhood. The purpose of setting up the APPG was to ensure that those with the condition and their families receive the earliest possible interventions, the best pathways of care throughout their lives, and the brightest futures.
Our first report discussed the need for effective, early intervention to improve life outcomes and minimise secondary complications. Building on that, this report examines best practice in Education, Health and Care Plans (EHCPs), Teaching, and Learning for Children with cerebral palsy which our third and fourth APPG meetings examined in detail. As Members of Parliament with lived experience of cerebral palsy, we hope Government will engage with the APPG’s recommendations and work with us to provide quality provision and specialist care for children and young people with cerebral palsy.
The report calls for better early intervention in education and healthcare plans which are tailored to the specific needs of each child with cerebral palsy.
It recommends the Government appoints a national Cerebral Palsy Action Champion who would “oversee the joint working recommended by the Education Committee’s SEND Report, ensuring any outcome framework is implemented effectively…”, creates a single framework for EHCPs that honours the voices of parents, and ensures that every local authority signs up to a Cerebral Palsy Covenant to end the “postcode lottery” of support.
#APPGonCP has published our second report on #WorldCerebralPalsyDay as part of our commitment to examining #cerebralpalsy as a lifelong condition. Find out more here: https://t.co/ixeb8lk2Bu pic.twitter.com/z7xGoesJdD
— APPG on Cerebral Palsy (@CPAPPG) October 6, 2021
Mary looks forward to continuing the work of the APPG and hopes that the report is warmly received and actioned by the Government. Mary continues to advocate for those with cerebral palsy and their families.